TY - JOUR
T1 - Exploring Patient Experiences of Symptom Support From Healthcare Professionals in Acute and Chronic Illness
T2 - A Qualitative Study
AU - Missel, Malene
AU - Jarden, Mary
AU - Witting, Nanna
AU - Pappot, Helle
AU - Schønau, Mai Nanna
AU - Mathiasen, Maria Camilla
AU - Corvinius, Camilla
AU - Donsel, Pernille Orloff
AU - Culligan, Melissa
AU - Locatelli, Giulia
AU - Piil, Karin
AU - Andersen, Linda Kahr
N1 - © 2026 The Author(s). Scandinavian Journal of Caring Sciences published by John Wiley & Sons Ltd on behalf of Nordic College of Caring Science.
PY - 2026/3
Y1 - 2026/3
N2 - BACKGROUND: Symptoms are a central part of living with illness, and healthcare professionals play a crucial role in supporting patients in the managing of these. Symptom support is not only about alleviating physical discomfort but also about addressing the subjective and existential dimensions of illness. Understanding how patients experience such support is essential for strengthening communication, dignity, and person-centred care.AIMS: This study aims to explore the meaning of patients' experience of support from HCP in managing symptoms, and how this meaning shapes their understanding of symptoms and subsequent strategies.METHODS: A qualitative design was applied. In-depth interviews were conducted with 10 patients diagnosed with acute or chronic illness and receiving care in hospital and outpatient settings. Data were analysed using a phenomenological hermeneutic approach inspired by Ricoeur.FINDINGS: Three themes were identified. Caught in the gaps of continuity in care describes how patients experienced symptom support as fragmented and inconsistent, shaped both by organisational structures and the professionals they encountered. Dialogue, relationship and professional knowledge as a vulnerable space highlights how encounters with healthcare professionals were perceived as fragile moments, where recognition, time, and competence could either foster trust or leave patients feeling exposed. Between silence and support in the healthcare encounter reflects how organisational structures and clinical routines often failed to address patients' concerns, creating silent spaces where symptoms and existential needs were overlooked.CONCLUSIONS: Patient experiences reveal how symptom support is shaped by both relational vulnerability and systemic fragmentation. When symptoms are overlooked, patients feel abandoned and burdened with coordinating their own care. Strengthening relational continuity, clarifying roles across professions explicitly to patients, and prioritising dialogue and empathy in clinical encounters are crucial steps toward ensuring person-centred symptom management that promotes dignity and well-being.
AB - BACKGROUND: Symptoms are a central part of living with illness, and healthcare professionals play a crucial role in supporting patients in the managing of these. Symptom support is not only about alleviating physical discomfort but also about addressing the subjective and existential dimensions of illness. Understanding how patients experience such support is essential for strengthening communication, dignity, and person-centred care.AIMS: This study aims to explore the meaning of patients' experience of support from HCP in managing symptoms, and how this meaning shapes their understanding of symptoms and subsequent strategies.METHODS: A qualitative design was applied. In-depth interviews were conducted with 10 patients diagnosed with acute or chronic illness and receiving care in hospital and outpatient settings. Data were analysed using a phenomenological hermeneutic approach inspired by Ricoeur.FINDINGS: Three themes were identified. Caught in the gaps of continuity in care describes how patients experienced symptom support as fragmented and inconsistent, shaped both by organisational structures and the professionals they encountered. Dialogue, relationship and professional knowledge as a vulnerable space highlights how encounters with healthcare professionals were perceived as fragile moments, where recognition, time, and competence could either foster trust or leave patients feeling exposed. Between silence and support in the healthcare encounter reflects how organisational structures and clinical routines often failed to address patients' concerns, creating silent spaces where symptoms and existential needs were overlooked.CONCLUSIONS: Patient experiences reveal how symptom support is shaped by both relational vulnerability and systemic fragmentation. When symptoms are overlooked, patients feel abandoned and burdened with coordinating their own care. Strengthening relational continuity, clarifying roles across professions explicitly to patients, and prioritising dialogue and empathy in clinical encounters are crucial steps toward ensuring person-centred symptom management that promotes dignity and well-being.
KW - acute and chronic illness
KW - healthcare professionals
KW - patient involvement
KW - patient-centred care
KW - phenomenology
KW - qualitative study
KW - Ricoeur
KW - symptom experiences
KW - symptom science
UR - https://www.scopus.com/pages/publications/105031481255
U2 - 10.1111/scs.70210
DO - 10.1111/scs.70210
M3 - Journal article
C2 - 41749440
SN - 0283-9318
VL - 40
SP - e70210
JO - Scandinavian Journal of Caring Sciences
JF - Scandinavian Journal of Caring Sciences
IS - 1
M1 - e70210
ER -