TY - JOUR
T1 - Embracing dissensus in lived experience research
T2 - the power of conflicting experiential knowledge
AU - Speyer, Helene
AU - Ustrup, Marte
N1 - Copyright © 2025 Elsevier Ltd. All rights reserved, including those for text and data mining, AI training, and similar technologies.
PY - 2025/4
Y1 - 2025/4
N2 - Lived experience is a crucial component in the development of innovative interventions and services in mental health care. To unlock the full potential of this valuable source of knowledge, it is essential to actively cultivate and understand it. A common concern, however, is the variability of perspectives, as individuals with lived experience might express opposing views on some issues. Building on our own journey as researchers with a combination of academic training and lived experience, we have developed an approach that treats dissensus not necessarily as a challenge to be resolved through consensus, but rather as a source of innovation. Our approach involves a two-step model. First, we identify the genuine points of disagreement or true negations between us. Next, we clarify the epistemic goal of the inquiry at hand. Based on this process, we determine whether the dissensus-often a rich, complex expression of variation-offers deeper insights, or if a more generalised, consensus-based message would be the most effective way to answer the inquiry. With this Personal View, we hope to inspire collaborators, both with and without lived experience, to engage rigorously and enthusiastically with dissensus, recognising its potential as a driver of innovation.
AB - Lived experience is a crucial component in the development of innovative interventions and services in mental health care. To unlock the full potential of this valuable source of knowledge, it is essential to actively cultivate and understand it. A common concern, however, is the variability of perspectives, as individuals with lived experience might express opposing views on some issues. Building on our own journey as researchers with a combination of academic training and lived experience, we have developed an approach that treats dissensus not necessarily as a challenge to be resolved through consensus, but rather as a source of innovation. Our approach involves a two-step model. First, we identify the genuine points of disagreement or true negations between us. Next, we clarify the epistemic goal of the inquiry at hand. Based on this process, we determine whether the dissensus-often a rich, complex expression of variation-offers deeper insights, or if a more generalised, consensus-based message would be the most effective way to answer the inquiry. With this Personal View, we hope to inspire collaborators, both with and without lived experience, to engage rigorously and enthusiastically with dissensus, recognising its potential as a driver of innovation.
KW - Humans
KW - Knowledge
KW - Mental Health Services
KW - Consensus
UR - http://www.scopus.com/inward/record.url?scp=85218904108&partnerID=8YFLogxK
U2 - 10.1016/S2215-0366(25)00003-3
DO - 10.1016/S2215-0366(25)00003-3
M3 - Review
C2 - 40023171
SN - 2215-0366
VL - 12
SP - 310
EP - 316
JO - The Lancet. Psychiatry
JF - The Lancet. Psychiatry
IS - 4
ER -