Forskning
Udskriv Udskriv
Switch language
Region Hovedstaden - en del af Københavns Universitetshospital
Udgivet

Development of the International Severe Asthma Registry (ISAR): a modified Delphi study

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

DOI

  1. Allergy Development in Adulthood: An Occupational Cohort Study of the Manufacturing of Industrial Enzymes

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Role and Impact of Chronic Cough in Individuals with Asthma From the General Population

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. Sensitivity of Multiple Breath Washout to Detect Mild to Moderate Asthma in Adolescence

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. IgE-Mediated Multimorbidities in Allergic Asthma and the Potential for Omalizumab Therapy

    Publikation: Bidrag til tidsskriftReviewForskningpeer review

  5. Hematopoietic Stem Cell Transplantation as Treatment for Patients with DOCK8 Deficiency

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  1. Characteristics and treatment regimens across ERS SHARP severe asthma registries

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Primary ciliary dyskinesia patients have the same P. aeruginosa clone in sinuses and lungs

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. The risk of asthma is increased among women with polycystic ovary syndrome: a twin study

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. Benralizumab for the Prevention of COPD Exacerbations

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  • Lakmini Bulathsinhala
  • Nevaashni Eleangovan
  • Liam G Heaney
  • Andrew Menzies-Gow
  • Peter G Gibson
  • Matthew Peters
  • Mark Hew
  • Job Fm van Boven
  • Lauri Lehtimäki
  • Eric van Ganse
  • Manon Belhassen
  • Erin Harvey
  • Luis Perez de Llano
  • Anke H Maitland-van der Zee
  • Nikolaos Papadopoulos
  • J Mark FitzGerald
  • Celeste Porsbjerg
  • G Walter Canonica
  • Vibeke Backer
  • Chin Kook Rhee
  • Katia Verhamme
  • Roland Buhl
  • Borja G Cosio
  • Victoria Carter
  • Chris Price
  • Thao Le
  • Martina Stagno d'Alcontres
  • Gokul Gopalan
  • Trung Tran
  • David Price
Vis graf over relationer

BACKGROUND: The lack of centralised data on severe asthma has resulted in a scarcity of information about the disease and its management. The development of a common data collection tool for the International Severe Asthma Registry (ISAR) will enable standardised data collection, subsequently enabling data interoperability.

OBJECTIVES: To create a standardised list of variables for the first international registry for severe asthma via expert consensus.

METHODS: A modified Delphi process was used to reach consensus on a minimum set of variables to capture in ISAR: the core variables. The Delphi panel brought together 27 international experts in the field of severe asthma research. The process consisted of three iterative rounds. In each round, all Delphi panel members were issued an electronic ISAR Delphi workbook to complete and return to the ISAR Delphi administrator. Workbooks and result summaries were anonymously distributed by the Delphi administrator to all panel members at subsequent rounds. Finalisation of the core variable list was facilitated by two face-to-face meetings.

RESULTS: Of the initial 747 selected variables, the Delphi panel reached a consensus on 95. The chosen variables will allow severe asthma to be assessed against patient demographics and medical history, patient-reported outcomes, diagnostic information and clinical characteristics. Physician-reported outcomes such as non-adherence and information about treatment and management strategies will also be recorded.

CONCLUSION: This is the first global attempt to generate an international severe asthma registry using a common set of core variables to ensure that data collected across all participating countries are standardised.

OriginalsprogEngelsk
Artikelnummer7
TidsskriftThe journal of allergy and clinical immunology. In practice
Sider (fra-til)578-88
Antal sider11
ISSN2213-2198
DOI
StatusUdgivet - feb. 2019

ID: 55231036