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"Development in well-being and social function among Danish hemophilia patients with HIV: a three-wave panel study spanning 24 years"

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Author

Ingvorsen, Emilie B ; Schnohr, Christina ; Andersen, Terkel ; Lehrmann, Lars ; Funding, Eva ; Poulsen, Lone H ; Holm, Karen B ; Laursen, Alex L ; Gerstoft, Jan ; Bjorner, Jakob B. / "Development in well-being and social function among Danish hemophilia patients with HIV : a three-wave panel study spanning 24 years". I: BMC Public Health. 2019 ; Bind 19, Nr. 1. s. 1714.

Bibtex

@article{762ba4c99d52490dbc7f2cc9c8c0d66c,
title = "{"}Development in well-being and social function among Danish hemophilia patients with HIV: a three-wave panel study spanning 24 years{"}",
abstract = "BACKGROUND: Between 1975 and 1985 a total of 91 Danish patients with moderate and severe hemophilia (PWH) was infected with HIV constituting a major scandal in the Danish health care system. This study describes the burden of HIV infection among Danish PWH by evaluating changes from 1988 to 2012 in well-being, social function, experiencing stigma and openness about disease among Danish HIV+ PWH.METHODS: Three anonymous surveys were conducted in 1988, 2001 and 2012 targeting all Danish patients with moderate to severe hemophilia. Survey responses were received from 53, 21 and 18 HIV+ PWH respectively. A matched comparison sample of HIV- PWH was identified for each survey-year, using propensity score matching. Differences for each survey-year and trends over time were analyzed using ordinal logistic regression.RESULTS: In 1988, HIV+ PWH had more psychosomatic symptoms than HIV- PWH, but in 2001 life satisfaction was higher among HIV+ PWH than among HIV- PWH. Tests of differences in trend over time showed larger improvements in life satisfaction among HIV+ PWH than HIV- PWH, while HIV- PWH showed an increase in educational level compared to HIV+ PWH. Analysis restricted to HIV+ PWH showed an increase in perceived stigmatization.CONCLUSIONS: Differences between Danish HIV+ and HIV- PWH regarding well-being and psychosomatic symptoms seem to have evened out between 1988 and 2012. However, results suggest that HIV+ PWH still experience stigmatization and lower levels of education.",
author = "Ingvorsen, {Emilie B} and Christina Schnohr and Terkel Andersen and Lars Lehrmann and Eva Funding and Poulsen, {Lone H} and Holm, {Karen B} and Laursen, {Alex L} and Jan Gerstoft and Bjorner, {Jakob B}",
year = "2019",
month = dec,
day = "19",
doi = "10.1186/s12889-019-8062-9",
language = "English",
volume = "19",
pages = "1714",
journal = "BMC Public Health",
issn = "1471-2458",
publisher = "BioMed Central Ltd",
number = "1",

}

RIS

TY - JOUR

T1 - "Development in well-being and social function among Danish hemophilia patients with HIV

T2 - a three-wave panel study spanning 24 years"

AU - Ingvorsen, Emilie B

AU - Schnohr, Christina

AU - Andersen, Terkel

AU - Lehrmann, Lars

AU - Funding, Eva

AU - Poulsen, Lone H

AU - Holm, Karen B

AU - Laursen, Alex L

AU - Gerstoft, Jan

AU - Bjorner, Jakob B

PY - 2019/12/19

Y1 - 2019/12/19

N2 - BACKGROUND: Between 1975 and 1985 a total of 91 Danish patients with moderate and severe hemophilia (PWH) was infected with HIV constituting a major scandal in the Danish health care system. This study describes the burden of HIV infection among Danish PWH by evaluating changes from 1988 to 2012 in well-being, social function, experiencing stigma and openness about disease among Danish HIV+ PWH.METHODS: Three anonymous surveys were conducted in 1988, 2001 and 2012 targeting all Danish patients with moderate to severe hemophilia. Survey responses were received from 53, 21 and 18 HIV+ PWH respectively. A matched comparison sample of HIV- PWH was identified for each survey-year, using propensity score matching. Differences for each survey-year and trends over time were analyzed using ordinal logistic regression.RESULTS: In 1988, HIV+ PWH had more psychosomatic symptoms than HIV- PWH, but in 2001 life satisfaction was higher among HIV+ PWH than among HIV- PWH. Tests of differences in trend over time showed larger improvements in life satisfaction among HIV+ PWH than HIV- PWH, while HIV- PWH showed an increase in educational level compared to HIV+ PWH. Analysis restricted to HIV+ PWH showed an increase in perceived stigmatization.CONCLUSIONS: Differences between Danish HIV+ and HIV- PWH regarding well-being and psychosomatic symptoms seem to have evened out between 1988 and 2012. However, results suggest that HIV+ PWH still experience stigmatization and lower levels of education.

AB - BACKGROUND: Between 1975 and 1985 a total of 91 Danish patients with moderate and severe hemophilia (PWH) was infected with HIV constituting a major scandal in the Danish health care system. This study describes the burden of HIV infection among Danish PWH by evaluating changes from 1988 to 2012 in well-being, social function, experiencing stigma and openness about disease among Danish HIV+ PWH.METHODS: Three anonymous surveys were conducted in 1988, 2001 and 2012 targeting all Danish patients with moderate to severe hemophilia. Survey responses were received from 53, 21 and 18 HIV+ PWH respectively. A matched comparison sample of HIV- PWH was identified for each survey-year, using propensity score matching. Differences for each survey-year and trends over time were analyzed using ordinal logistic regression.RESULTS: In 1988, HIV+ PWH had more psychosomatic symptoms than HIV- PWH, but in 2001 life satisfaction was higher among HIV+ PWH than among HIV- PWH. Tests of differences in trend over time showed larger improvements in life satisfaction among HIV+ PWH than HIV- PWH, while HIV- PWH showed an increase in educational level compared to HIV+ PWH. Analysis restricted to HIV+ PWH showed an increase in perceived stigmatization.CONCLUSIONS: Differences between Danish HIV+ and HIV- PWH regarding well-being and psychosomatic symptoms seem to have evened out between 1988 and 2012. However, results suggest that HIV+ PWH still experience stigmatization and lower levels of education.

U2 - 10.1186/s12889-019-8062-9

DO - 10.1186/s12889-019-8062-9

M3 - Journal article

C2 - 31856778

VL - 19

SP - 1714

JO - BMC Public Health

JF - BMC Public Health

SN - 1471-2458

IS - 1

ER -

ID: 59436561