Creating a Global Community of Practice for Oncofertility

Lauren M Ataman, Jhenifer K Rodrigues, Ricardo M Marinho, João P J Caetano, Maurício B Chehin, Eduardo L Alves da Motta, Paulo Serafini, Nao Suzuki, Tatsuro Furui, Seido Takae, Yodo Sugishita, Ken-Ichiro Morishige, Teresa Almeida-Santos, Cláudia Melo, Karen Buzaglo, Kate Irwin, W Hamish Wallace, Richard A Anderson, Roderick T Mitchell, Evelyn E TelferSatish K Adiga, Antoinette Anazodo, Catharyn Stern, Elizabeth Sullivan, Yasmin Jayasinghe, Lisa Orme, Richard Cohn, Rob McLachlan, Rebecca Deans, Franca Agresta, Brigitte Gerstl, William L Ledger, Rebecca L Robker, João M de Meneses E Silva, Lígia H F Melo E Silva, Franciele O Lunardi, Jung R Lee, Chang S Suh, Michael De Vos, Ellen Van Moer, Dominic Stoop, Veerle Vloeberghs, Johan Smitz, Herman Tournaye, Ludwig Wildt, Katharina Winkler-Crepaz, Claus Yding Andersen, Brigid M Smith, Kristin Smith, Teresa K Woodruff

    Abstract

    Fertility preservation in the cancer setting, known as oncofertility, is a field that requires cross-disciplinary interaction between physicians, basic scientists, clinical researchers, ethicists, lawyers, educators, and religious leaders. Funded by the National Institutes of Health, the Oncofertility Consortium (OC) was formed to be a scientifically grounded, transparent, and altruistic resource, both intellectual and monetary, for building this new field of practice capable of addressing the unique needs of young patients with cancer. The OC has expanded its attention to include other nonmalignant conditions that can threaten fertility, and the work of the OC now extends around the globe, involving partners who together have created a community of shared effort, resources, and practices. The OC creates materials that are translated, disseminated, and amended by all participants in the field, and local programs of excellence have developed worldwide to accelerate the pace and improve the quality of oncofertility research and practice. Here we review the global oncofertility programs and the capacity building activities that strengthen these research and clinical programs, ultimately improving patient care.

    OriginalsprogEngelsk
    TidsskriftJournal of global oncology
    Vol/bind2
    Udgave nummer2
    Sider (fra-til)83-96
    Antal sider14
    ISSN2378-9506
    DOI
    StatusUdgivet - apr. 2016

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