TY - JOUR
T1 - Core Outcome Sets Specifically for Longterm Observational Studies
T2 - OMERACT Special Interest Group Update in Rheumatoid Arthritis
AU - Lopez-Olivo, Maria A
AU - Negrón, José B
AU - Zogala, Richard J
AU - Carmona, Loreto
AU - Criner, Karla
AU - Goel, Niti
AU - Gonzalez-Lopez, Laura
AU - Ingegnoli, Francesca
AU - Leong, Amye
AU - March, Lyn
AU - Shea, Beverly
AU - Strand, Vibeke
AU - Tugwell, Peter
AU - Westrich-Robertson, Tiffany
AU - Zamora, Natalia V
AU - Christensen, Robin
AU - Suarez-Almazor, Maria E
PY - 2019/9
Y1 - 2019/9
N2 - OBJECTIVE: This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis.METHODS: Preliminary data and proposed next steps were outlined and discussed by participants.RESULTS: Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death.CONCLUSION: The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.
AB - OBJECTIVE: This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis.METHODS: Preliminary data and proposed next steps were outlined and discussed by participants.RESULTS: Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death.CONCLUSION: The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.
KW - Observational studies
KW - Omeract
KW - Outcome assessment
KW - Registries
KW - Rheumatoid arthritis
UR - http://www.scopus.com/inward/record.url?scp=85071733234&partnerID=8YFLogxK
U2 - 10.3899/jrheum.181076
DO - 10.3899/jrheum.181076
M3 - Journal article
C2 - 30824644
SN - 0315-162X
VL - 46
SP - 1164
EP - 1167
JO - Journal of Rheumatology
JF - Journal of Rheumatology
IS - 9
ER -