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Region Hovedstaden - en del af Københavns Universitetshospital
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Completeness and validity in a national clinical thyroid cancer database: DATHYRCA

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

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  • Stefano Christian Londero
  • Jes Sloth Mathiesen
  • Annelise Krogdahl
  • Lars Bastholt
  • Jens Overgaard
  • Jens Bentsen
  • Christoffer Holst Hahn
  • Sten Schytte
  • Henrik Baymler Pedersen
  • Peer Christiansen
  • Christian Godballe
  • study from the Danish Thyroid Cancer Group
  • Birte Nygaard
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BACKGROUND: Although a prospective national clinical thyroid cancer database (DATHYRCA) has been active in Denmark since January 1, 1996, no assessment of data quality has been performed. The purpose of the study was to evaluate completeness and data validity in the Danish national clinical thyroid cancer database: DATHYRCA.

STUDY DESIGN AND SETTING: National prospective cohort. Denmark; population 5.5 million. Completeness of case ascertainment was estimated by the independent case ascertainment method using three governmental registries as a reference. The reabstracted record method was used to appraise the validity. For validity assessment 100 cases were randomly selected from the DATHYRCA database; medical records were used as a reference.

RESULT: The database held 1934 cases of thyroid carcinoma and completeness of case ascertainment was estimated to 90.9%. Completeness of registration was around or above 90% in most instances. Perfect agreement on the diagnosis of thyroid carcinoma was found, both inter- and intra-observer, and κ values of selected variables showed overall good to excellent agreement.

CONCLUSION: In a setup with public health insurance, personal identity numbers and extended governmental databases, it is possible to establish national clinical cancer databases with a satisfactory completeness and validity. The DATHYRCA database is considered reliable in terms of describing thyroid carcinoma at a national level.

OriginalsprogEngelsk
TidsskriftCancer epidemiology
Vol/bind38
Udgave nummer5
Sider (fra-til)633-7
Antal sider5
ISSN1877-7821
DOI
StatusUdgivet - okt. 2014

ID: 44862086