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Community dwelling life- and health issues among persons living with chronic spinal cord injury in North Macedonia

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Jakimovska, Vesna Miloshevska ; Biering-Sørensen, Fin ; Lidal, Ingeborg Beate ; Kostovski, Emil. / Community dwelling life- and health issues among persons living with chronic spinal cord injury in North Macedonia. I: Spinal Cord. 2022 ; Bind 60, Nr. 3. s. 245-250.

Bibtex

@article{da60d9e9a4864fceb9110bddb5a9e2f8,
title = "Community dwelling life- and health issues among persons living with chronic spinal cord injury in North Macedonia",
abstract = "STUDY DESIGN: Cross-sectional study.OBJECTIVES: The purpose was to reveal late health consequences and life issues after a traumatic spinal cord injury (tSCI) in North Macedonia (NM).SETTING: Community dwelling adults with tSCI in NM.METHODS: Persons that sustained tSCI in 1999-2005 were selected, physical examined and a questionnaire was administered. Descriptive statistics were conducted.RESULTS: From 203 eligible persons, 40 agreed to participate. Mean (range) age at time of injury was 36 (27-75) years and time since injury ranged 9-20 years. Around seventy percent reported current health problems, of which pain and spasm (>60%) were most prevalent, followed by urinary tract infections and pressure injuries. About 30% had never been to a medical specialist and ≈70% had only once been to physiotherapy after discharge from the primary inpatient period. Only one participant had a fully adjusted home for a person with a disability. Those with most severe tSCI (American Spinal Injury Association Impairment Scale (AIS) A, B, and C) seldom left their homes. About 50% were retired and/or unemployed, 50% were working.CONCLUSION: This is the first study describing community-dwelling persons with a tSCI in NM. Our study revealed that persons with tSCI reported health issues mostly related to pain, spasms, urinary tract infections and pressure injuries. They lacked follow-ups, experienced physical barriers and poor inclusion in the society, and lacked financial support. Therefore, they were often socially isolated and fully dependent on their families. NM is in need of structured rehabilitation programs and better adaption for persons with reduced mobility.",
keywords = "Adolescent, Adult, Child, Cross-Sectional Studies, Humans, Independent Living, Physical Therapy Modalities, Republic of North Macedonia, Spinal Cord Injuries/complications, Young Adult",
author = "Jakimovska, {Vesna Miloshevska} and Fin Biering-S{\o}rensen and Lidal, {Ingeborg Beate} and Emil Kostovski",
note = "{\textcopyright} 2021. The Author(s), under exclusive licence to International Spinal Cord Society.",
year = "2022",
month = mar,
doi = "10.1038/s41393-021-00688-4",
language = "English",
volume = "60",
pages = "245--250",
journal = "Spinal Cord",
issn = "1362-4393",
publisher = "Nature Publishing Group",
number = "3",

}

RIS

TY - JOUR

T1 - Community dwelling life- and health issues among persons living with chronic spinal cord injury in North Macedonia

AU - Jakimovska, Vesna Miloshevska

AU - Biering-Sørensen, Fin

AU - Lidal, Ingeborg Beate

AU - Kostovski, Emil

N1 - © 2021. The Author(s), under exclusive licence to International Spinal Cord Society.

PY - 2022/3

Y1 - 2022/3

N2 - STUDY DESIGN: Cross-sectional study.OBJECTIVES: The purpose was to reveal late health consequences and life issues after a traumatic spinal cord injury (tSCI) in North Macedonia (NM).SETTING: Community dwelling adults with tSCI in NM.METHODS: Persons that sustained tSCI in 1999-2005 were selected, physical examined and a questionnaire was administered. Descriptive statistics were conducted.RESULTS: From 203 eligible persons, 40 agreed to participate. Mean (range) age at time of injury was 36 (27-75) years and time since injury ranged 9-20 years. Around seventy percent reported current health problems, of which pain and spasm (>60%) were most prevalent, followed by urinary tract infections and pressure injuries. About 30% had never been to a medical specialist and ≈70% had only once been to physiotherapy after discharge from the primary inpatient period. Only one participant had a fully adjusted home for a person with a disability. Those with most severe tSCI (American Spinal Injury Association Impairment Scale (AIS) A, B, and C) seldom left their homes. About 50% were retired and/or unemployed, 50% were working.CONCLUSION: This is the first study describing community-dwelling persons with a tSCI in NM. Our study revealed that persons with tSCI reported health issues mostly related to pain, spasms, urinary tract infections and pressure injuries. They lacked follow-ups, experienced physical barriers and poor inclusion in the society, and lacked financial support. Therefore, they were often socially isolated and fully dependent on their families. NM is in need of structured rehabilitation programs and better adaption for persons with reduced mobility.

AB - STUDY DESIGN: Cross-sectional study.OBJECTIVES: The purpose was to reveal late health consequences and life issues after a traumatic spinal cord injury (tSCI) in North Macedonia (NM).SETTING: Community dwelling adults with tSCI in NM.METHODS: Persons that sustained tSCI in 1999-2005 were selected, physical examined and a questionnaire was administered. Descriptive statistics were conducted.RESULTS: From 203 eligible persons, 40 agreed to participate. Mean (range) age at time of injury was 36 (27-75) years and time since injury ranged 9-20 years. Around seventy percent reported current health problems, of which pain and spasm (>60%) were most prevalent, followed by urinary tract infections and pressure injuries. About 30% had never been to a medical specialist and ≈70% had only once been to physiotherapy after discharge from the primary inpatient period. Only one participant had a fully adjusted home for a person with a disability. Those with most severe tSCI (American Spinal Injury Association Impairment Scale (AIS) A, B, and C) seldom left their homes. About 50% were retired and/or unemployed, 50% were working.CONCLUSION: This is the first study describing community-dwelling persons with a tSCI in NM. Our study revealed that persons with tSCI reported health issues mostly related to pain, spasms, urinary tract infections and pressure injuries. They lacked follow-ups, experienced physical barriers and poor inclusion in the society, and lacked financial support. Therefore, they were often socially isolated and fully dependent on their families. NM is in need of structured rehabilitation programs and better adaption for persons with reduced mobility.

KW - Adolescent

KW - Adult

KW - Child

KW - Cross-Sectional Studies

KW - Humans

KW - Independent Living

KW - Physical Therapy Modalities

KW - Republic of North Macedonia

KW - Spinal Cord Injuries/complications

KW - Young Adult

UR - http://www.scopus.com/inward/record.url?scp=85113199625&partnerID=8YFLogxK

U2 - 10.1038/s41393-021-00688-4

DO - 10.1038/s41393-021-00688-4

M3 - Journal article

C2 - 34408273

VL - 60

SP - 245

EP - 250

JO - Spinal Cord

JF - Spinal Cord

SN - 1362-4393

IS - 3

ER -

ID: 69206798