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Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care

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@article{bb580a42c0854fff82dfa97140df343c,
title = "Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care",
abstract = "This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one's own needs, assuming the role of project manager, and losing one's sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective.",
keywords = "cancer, codependency, family caregivers, oncology, spouse caregivers",
author = "Mattias Tranberg and Magdalena Andersson and Mef Nilbert and Rasmussen, {Birgit H}",
year = "2019",
month = "11",
day = "28",
doi = "10.1177/1359105319890407",
language = "English",
journal = "Journal of Health Psychology",
issn = "1359-1053",
publisher = "Sage Publications Ltd",

}

RIS

TY - JOUR

T1 - Co-afflicted but invisible

T2 - A qualitative study of perceptions among informal caregivers in cancer care

AU - Tranberg, Mattias

AU - Andersson, Magdalena

AU - Nilbert, Mef

AU - Rasmussen, Birgit H

PY - 2019/11/28

Y1 - 2019/11/28

N2 - This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one's own needs, assuming the role of project manager, and losing one's sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective.

AB - This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one's own needs, assuming the role of project manager, and losing one's sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective.

KW - cancer

KW - codependency

KW - family caregivers

KW - oncology

KW - spouse caregivers

UR - http://www.scopus.com/inward/record.url?scp=85076560855&partnerID=8YFLogxK

U2 - 10.1177/1359105319890407

DO - 10.1177/1359105319890407

M3 - Journal article

JO - Journal of Health Psychology

JF - Journal of Health Psychology

SN - 1359-1053

ER -

ID: 58502931