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Region Hovedstaden - en del af Københavns Universitetshospital
E-pub ahead of print

Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

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  • Mattias Tranberg
  • Magdalena Andersson
  • Mef Nilbert
  • Birgit H Rasmussen
Vis graf over relationer

This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one's own needs, assuming the role of project manager, and losing one's sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective.

OriginalsprogEngelsk
TidsskriftJournal of Health Psychology
ISSN1359-1053
DOI
StatusE-pub ahead of print - 28 nov. 2019

ID: 58502931