Balancing ideals and realities: health care professionals' perspectives of and attitudes toward digital patient-centered cancer care

Elias David Lundereng*, Alen Brkic, Kate Absolom, Elisabeth Andvik, Kim Beernaert, Kathrin Cresswell, Olav Faisal Dajani, Nienke De Glas, Marie Fallon, Victoria Freitas-Durks, Kristin Vassbotn Guldhav, Marianne Jensen Hjermstad, Stein Kaasa, Geana Paula Kurita, Jo Åsmund Lund, Nicoleta Mitrea, Steven Olde Damink, Ørnulf Paulsen, Guro Meldre Pedersen, Terese Solvoll SkåreTonje Lundeby, The MyPath consortium

*Corresponding author af dette arbejde

Abstract

PURPOSE: Patient-centered care (PCC) improves quality of life, symptom management and healthcare outcomes in oncology. However, integration into routine cancer care remains limited. Digital solutions using patient-reported outcome measures (PROMs) offer a potential mechanism to operationalize PCC. This study explored healthcare professionals' (HCPs) pre-implementation perspectives on using digital PROMs to support PCC in Norwegian oncology outpatient clinics, informing the design and implementation strategies of the European MyPath digital solution. METHODS: Semi-structured interviews (n = 29) and three focus groups (n = 16) were conducted with varied HCPs across four Norwegian hospitals. Interviews explored perceptions of PCC, experiences with PROMs, and requirements for digital implementation. Data were analyzed using thematic analysis, combining inductive and deductive coding guided by the TPOM framework. RESULTS: Four themes emerged: (1) balancing PCC with disease-centered practices, (2) integrating PCC into daily routines, (3) customization and patient acceptance of digital tools, and (4) combining patient-reported data with clinical autonomy. HCPs viewed digital PROMs as promising for facilitating PCC but emphasized that successful implementation requires workflow alignment, adaptable digital solutions, and strong stakeholder engagement. Concerns included patient digital literacy, workload implications, and overreliance on PROMs at the expense of direct patient interaction. CONCLUSION: Our findings highlight a tension between HCPs' needs for technical functionality and workflow alignment, and the support required to adapt their practice to fully realize PCC through digital tools. Integrating PCC successfully requires organizational, cultural, and workflow adaptations, alongside active HCP engagement in design and implementation. These changes are essential to reposition PCC as an integral rather than competing component of high-quality cancer care.

OriginalsprogEngelsk
TidsskriftQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Vol/bind35
Udgave nummer3
Sider (fra-til)76
Antal sider1
ISSN0962-9343
DOI
StatusUdgivet - 18 feb. 2026

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