Advance care planning til børn og unge med livstruende eller livsbegrænsende sygdom

Katrine Mose Sannerum; Louise Engelbrecht Buur; Camilla Lykke; Thomas Nørrelykke Nissen; Mette Kjærgaard Nielsen; Signe Hoff Kobborg Larsen; Mette Asbjørn Neergaard

doi:10.61409/V05250390

Advance care planning til børn og unge med livstruende eller livsbegrænsende sygdom

Katrine Mose Sannerum, Louise Engelbrecht Buur, Camilla Lykke, Thomas Nørrelykke Nissen, Mette Kjærgaard Nielsen, Signe Hoff Kobborg Larsen, Mette Asbjørn Neergaard

Afdeling for Børn og Unge JMC

Abstract

Children with life-threatening or life-limiting illnesses and their families face significant physical and emotional distress. Advance care planning (ACP) provides an opportunity to discuss and document end-of-life wishes. ACP benefits are clear for adults, but evidence is lacking for paediatric populations. Ten American published ACP studies show reduced negative emotions, improved decision-making, enhanced family communication, and a significant increase in completion of advance directives. However, adaptation to Danish health care and systematic implementation are needed to adhere to a Danish setting, as argued in this review.

Bidragets oversatte titel	Advance care planning for children and adolescents with life-threatening or life-limiting illness
Originalsprog	Dansk
Artikelnummer	V05250390
Tidsskrift	Ugeskrift for Laeger
Vol/bind	187
Udgave nummer	48
ISSN	0041-5782
DOI	https://doi.org/10.61409/V05250390
Status	Udgivet - 24 nov. 2025

Emneord

Humans
Advance Care Planning
Child
Adolescent
Denmark
Terminal Care
Decision Making
Advance Directives

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10.61409/V05250390Licens: CC BY-NC-ND

Citationsformater

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abstract = "Children with life-threatening or life-limiting illnesses and their families face significant physical and emotional distress. Advance care planning (ACP) provides an opportunity to discuss and document end-of-life wishes. ACP benefits are clear for adults, but evidence is lacking for paediatric populations. Ten American published ACP studies show reduced negative emotions, improved decision-making, enhanced family communication, and a significant increase in completion of advance directives. However, adaptation to Danish health care and systematic implementation are needed to adhere to a Danish setting, as argued in this review.",

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AU - Sannerum, Katrine Mose

AU - Buur, Louise Engelbrecht

AU - Lykke, Camilla

AU - Nissen, Thomas Nørrelykke

AU - Nielsen, Mette Kjærgaard

AU - Larsen, Signe Hoff Kobborg

AU - Neergaard, Mette Asbjørn

N1 - Published under Open Access CC-BY-NC-BD 4.0. https://creativecommons.org/licenses/by-nc-nd/4.0/.

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N2 - Children with life-threatening or life-limiting illnesses and their families face significant physical and emotional distress. Advance care planning (ACP) provides an opportunity to discuss and document end-of-life wishes. ACP benefits are clear for adults, but evidence is lacking for paediatric populations. Ten American published ACP studies show reduced negative emotions, improved decision-making, enhanced family communication, and a significant increase in completion of advance directives. However, adaptation to Danish health care and systematic implementation are needed to adhere to a Danish setting, as argued in this review.

AB - Children with life-threatening or life-limiting illnesses and their families face significant physical and emotional distress. Advance care planning (ACP) provides an opportunity to discuss and document end-of-life wishes. ACP benefits are clear for adults, but evidence is lacking for paediatric populations. Ten American published ACP studies show reduced negative emotions, improved decision-making, enhanced family communication, and a significant increase in completion of advance directives. However, adaptation to Danish health care and systematic implementation are needed to adhere to a Danish setting, as argued in this review.

KW - Humans

KW - Advance Care Planning

KW - Child

KW - Adolescent

KW - Denmark

KW - Terminal Care

KW - Decision Making

KW - Advance Directives

U2 - 10.61409/V05250390

DO - 10.61409/V05250390

M3 - Review

C2 - 41311128

SN - 0041-5782

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JO - Ugeskrift for Laeger

JF - Ugeskrift for Laeger

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ER -

Advance care planning til børn og unge med livstruende eller livsbegrænsende sygdom

Abstract

Emneord

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