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Region Hovedstaden - en del af Københavns Universitetshospital

Chronic disruptions: How parents with a young child with type 1 diabetes navigate self-care and negotiate uncertainty in daily life

Aktivitet: Tale eller præsentationForedrag og mundtlige bidrag

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Natasja Kingod - Foredragsholder

Living as a parent and self-care surrogate of a young child with type 1 diabetes (T1D) is demanding and a disruption to ‘normal’ routinized daily living. Research has mainly focused on the time of diagnosis as a one-time biographical disruption. In this article, we will show how, in the case of families with young children with T1D, the biographical disruption can be viewed as a continuous state of vigilance that affects family functioning and ‘normal’ living. We will show this by focusing on the temporal events and moments that keep the families in a state of what we will term ‘chronic disruption.’ The events are the transitions from hospitalization to home, home to nursery, nursery to daycare, and daycare to school and preparations for social activities concerning the child. The moments are more fluid, ranging from daily interruptions when daycare workers and teachers call parents with doubts about self-care to negotiations with institutions and municipalities and a constant state of worry.
9 dec. 2019

Begivenhed (Konference)

TitelDanish Diabetes Academy. Children and adolescents with type 1 diabetes
Dato09/12/201910/12/2019
Hjemmeside
AfholdelsesstedCharlottehaven. 2100
ByKøbenhavn
Land/OmrådeDanmark
Grad af anerkendelseInternational begivenhed

ID: 58494710